I was waiting outside a Penn Medicine dermatology clinic when I learned that the verdict in George Floyd’s murder case was near. In mid-March, a sore on my mother’s left leg had become ferociously bad; she was hospitalized for infection, seemed to improve for a while, and then got worse (her condition aggravated by poor care at the local hospital); eventually she received a diagnosis of pyoderma gangrenosum, which is every bit as bad as it sounds. A recurrence of her 2015 lymphoma is a likely contributor, but we’ve been waiting more than a week for the results of a biopsy of two small masses in her abdomen. On 4/11, right after my second Moderna shot, I arrived at my brother’s house in Pennsylvania, where my mother has also lived for many years. I finally visited her in the hospital, cleaned the house, shopped, and helped set up a hospital bed and commode in the living room. We brought her home on 4/14. She was so miserable at the hospital. My sister found a wheelchair, so we’ve been trying to make it work while my sister, in New Jersey, sets up her own house for my mother’s long-term care (plus sorting out interstate insurance, because it’s America).
It’s been hard. Excellent visiting nurses came in daily for extremely painful and elaborate wound care, but meanwhile I was learning to keep a mostly-incapacitated elderly woman safe, clean, fed, hydrated, and as content as possible. She was very grateful to get home. From her bed or the nearby recliner, she was following the Chauvin trial and news of violence across the country; she was also interested in the “helicopter” on Mars and in Prince Phillip’s funeral procession. When a phlebotomist couldn’t find a vein, my mother slyly said, “It’s Prince Phillip’s fault,” although I don’t think anyone understood she was joking but me. When she slept, I read some news, a bit of a mystery novel, and a bit of social media. I’ve been able to do maybe an hour a day of my own work, but it’s hard to concentrate. Logistically and emotionally, there’s a lot going on. I started writing a poem a few days ago involving the strange in-betweenness of illness, the haunted noises my mother’s refrigerator makes during the middle of the night, and her repeated statement that someone was trying to get in the front door–maybe those three weirdnesses could hang together? Anyway, I was interrupted.
Coming home from the dermatology clinic, it became clearer how weak my mother was–not just tired, but suddenly not able to hold a cup, sleepy, hard to rouse. I called the GP. Their verdict: get her to the ER. I phoned 911 and my husband and I followed the ambulance to the hospital (a different one). I sat in the ER waiting room during my mother’s intake. Everyone was watching the talking heads on the TV saying, We’ll know the jury’s verdict any minute now. An orderly called me backstage to sit with my mother while various specialists did an EKG, blood work, CAT scans, x-rays. Messages floated up on text chain with the long-time friends to whom The State She’s In is dedicated. Guilty on all three counts. Mixed feelings of relief, hope, continuing anger.
“Diagnosis,” at root, means distinguishing a condition by setting it apart from others. From the Latin, “verdict” means true speech, and it has designated a jury’s decision since the 1530s. So is this week’s verdict uneven access to good healthcare, the diagnosis capitalism? In another sphere, a guilty verdict but a diagnosis of systemic racism, an illness that rots US life to its core?
I don’t know where I’ll be from one day to the next, much less what role poetry will play in the last week of this awful, beautiful National Poetry Month, but I do have an NPR StoryCorps interview lined up for tomorrow in regard to my novel Unbecoming. I have received a poem acceptance and a poetry batch rejection since I’ve been here, because tis the season. I also gave an Instagram Live reading from my mother’s upstairs bedroom, which was insane, but it was scheduled for 9 pm ET, after my mother fell asleep, so I pulled it off. It’s just 15 minutes and archived at the Instagram page of The Arkansas International (@thearkint), along with many other readings in honor of their new “Galactic” issue. My poem in that issue is “For Metamorphosis, with Bibliomancy,” so I read that along with a few other spells and invocations. Say a few words to your favorite deity for my mother, if you have the spirit for it–or call your congressional rep. There is so much to feel and to do.